Why precisely are YouTube.com videos made by me about my disorder? I don’t need anyone (adolescent, kid, or grownup) to feel like they are battling with this disorder, or another sickness, alone. I decide because I feel like through these movies to discuss my my own trip, I will be revealing what impact an uncommon autoimmune problem can have on someone, especially youths. I would like to reveal folks when life throws a road-block at them they could continue to be powerful. Above all, these movies are made by me to ensure knowledge is spread from the other side of the world about EoE. I would like to create a statement that we are going to never stop expecting for one, and that people urgently desire a remedy!:) xx
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Grace Lynne Brock
P.O. Box 11552
Cincinnati Ohio, 45211
Twitter: https://twitter.com/tigerluver3000
Facebook: “Grace Lynne Brock – tigerluver3000”
Tumblr: http://www.tumblr.com/blog/gracethehobbit
ForeverYourNerds: http://www.youtube.com/user/foreveryournerds?feature=watch
Hello Giggles Website: http://hellogiggles.com/writer/elegance-brock
movie score: / 5
how did you figure out you were allergic to all those? elimination diet? I need to figure it out, I lost 15 pounds recently from EOE and i'm a dude who likes to work out. so i'm pissed lol
I have EOE too.i have to get ivs a lot :(
Hi, I just to know if you ever hD trouble breathing, especially lying flat? Accompanied with chest heaviness, having difficulty expanding chest? And or vocal chord dysfunction? Thank you
My daughter has eoe as well, i am praying for all you youth that have this terrible disease. She has quite a few of the same symptoms as you. May God give you strength! to deal with it
Thank you! This was amazing. My son has EOE (and also had EOG/EOD). My daughter has multiple food allergies (anaphylactic). My son has been on elemental formula (although off it right now, trying budesonide). People have no idea how HARD it is to function when most of what others eat your child can't. This gave me a lot of courage. Thank you!
I have EoE. I'm allergic to dairy, soy, eggs, chocolate, I'm not sure about watermelon anymore, and I'm no longer allergic to wheat.
When I was younger, we simply restricted those foods, making it hard for snack time or birthdays in school. I had a lot of rice krispies. Now I'm either on budesinoide with honey/Flovent.
I hope you get better!
Its nice hearing the account of someone else with this disease. My case is not serious and there were no apparent food triggers, but i also have mild asthma caused by eosynophyls (i tried) and it worries me going on a permanent pill program at my age. Im looking into more natural treatments, and i have noticed i do better with more whole foods, and i will definitely drop you a comment if my research comes up with any good solutions. However, this is lesser known, so i dont have super high hopes. Anyways, i wish you the best and its nice to hear from someone else facing this
Oh my goodness I'm so happy I found I found you! My 2 year old was just diagnosed with this disease…I hate it. It's so hard to know why she is crying or what pain she is having. She was at first diagnosed with reflux and when the meds weren't working they scoped her and said she had EOE. We've been on the budesonide with splenda. Have you ever had to take the steroid with splenda? I thought it was kind of weird. But it hasn't been working and she is still throwing up and her raspy voice is back…she wont eat or drink anything hardly. They just told us to eliminate dairy which is so hard to do because she wont eat anything anyways… I feel for you and am grateful to hear someone who actually has it talk about the difficulties of it. Thank you!
Hey I have it as well but today my doctor told me my rsinofils were back to normal so just think there is hope for everyone I have been taking budesonide with 15ml of glucosentwice daily and I seem to be getting better
It feels very sad when your body part does not function well..I have acid reflux problem and already visited the doctor but not sure about full recovery.
Thank you so much for this video. I was just in the hospital with chest pains and arm pain. They thought it was heart related but a great GI doc found the answer. Never heard of it and now I am trying to adjust my life to it. Thanks for the donation info and purple is my new fav color. lol!
I have this as well I can't have soy,mustard,corn,peas,rice and other allergies and I'm in pain all the time it fucking sucks wouldn't wish it on my worst enemy
Check out this video on YouTube:
I have eoe too.
I can have lots of things just not dairy chicken and oats
I don't like school I'm 10 and my teacher does not except me because they just don't care. She yelled at me because I told her I was sad I could not have the b day treat…
my eosinophilia blood count is 20 now.. i stopped to hope of living already.. i cant breath at all..! i dont know how much time do i have now., iv been suffering from 4 months now and i dont know how long will i be able to live like this,.actually i want to die now. cz theres no meaning to living like this ..tried almost every foods every medications nothings working ..
whats your eosinophilia blood count?